{"id":22028,"date":"2022-12-14T18:48:48","date_gmt":"2022-12-14T18:48:48","guid":{"rendered":"https:\/\/www.nf1pn.eu\/inicio\/"},"modified":"2026-03-12T14:16:44","modified_gmt":"2026-03-12T14:16:44","slug":"inicio","status":"publish","type":"page","link":"https:\/\/www.nf1pn.eu\/es\/","title":{"rendered":"Inicio"},"content":{"rendered":"\t\t
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EN PRIMER PLANO<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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NEUROFIBROMATOSIS TIPO 1 CON NEUROFIBROMAS PLEXIFORMES<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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(NF1-NP)<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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Reg\u00edstrese en nuestra plataforma especializada para mantenerse al d\u00eda sobre los avances cient\u00edficos en el diagn\u00f3stico, la evaluaci\u00f3n cl\u00ednica y el tratamiento de la NF1-NP.<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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\"\"<\/a><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Acerca de la NF1-NP<\/a><\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\tUna afecci\u00f3n que a menudo es debilitante y, en muchos casos, cambia la vida, y que requiere un diagn\u00f3stico precoz, un seguimiento continuo y un tratamiento multidisciplinar durante toda la vida.1,2<\/sup>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Descubra m\u00e1s<\/a><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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<\/path><\/svg><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<\/a><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Carga de la enfermedad y necesidades insatisfechas<\/a><\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\tHasta el 50\u00a0% de las personas con NF1 desarrollan neurofibromas plexiformes, lo que puede provocar problemas f\u00edsicos, psicol\u00f3gicos y cognitivos.2-4<\/sup>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Descubra m\u00e1s<\/a><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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<\/path><\/svg><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<\/a><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Diagn\u00f3stico y manejo<\/a><\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Se recomienda que el tratamiento de la NF1 se lleve a cabo mediante un enfoque multidisciplinario (EMD) con especialistas que tengan experiencia en el tratamiento del NP asociado a la NF1.1,5<\/sup><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Ver las recomendaciones<\/a><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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\n\n\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/path><\/svg><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/path><\/svg><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tReferencias<\/a>\n\t\t\t\t\t<\/h5>\n\t\t\t\t\t
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  1. Carton C et al. ERN GENTURIS tumour surveillance guidelines for individuals with neurofibromatosis type 1. eClinicalMedicine<\/em>. 2023;56:101818. doi: 10.1016\/j.eclinm.2022.101818.<\/li>\n
  2. Ejerskov C, Farholt S, Nielsen FSK, et al. Clinical characteristics and management of children and adults with neurofibromatosis type 1 and plexiform neurofibromas in Denmark: a nationwide study. Oncol Ther<\/em>. 2023;11(1):97\u2013110. doi: 10.1007\/s40487-022-00213-4.<\/li>\n
  3. Miller DT, Freedenberg D, Schorry E, Ullrich NJ, Viskochil D, Korf BR; Council on Genetics; American College of Medical Genetics and Genomics. Health supervision for children with neurofibromatosis type 1. Pediatrics<\/em>. 2019;143(5):e20190660. doi: 10.1542\/peds.2019-0660.<\/li>\n
  4. Darrigo LG Jr, Ferraz VEF, Cormedi MCV, et al. Epidemiological profile and clinical characteristics of 491 Brazilian patients with neurofibromatosis type 1. Brain Behav.<\/em> 2022;12(6):e2599. doi: 10.1002\/brb3.2599.<\/li>\n
  5. Farschtschi S, Vaassen P, Kluwe L, Hartung T, Salamon J, Rosenbaum T. Age adapted diagnostic evaluation and treatment of patients with neurofibromatosis type 1 in Germany. Dtsch Arztebl <\/em>Int. 2025;122(3):71\u201376. doi: 10.3238\/arztebl.m2024.0257.<\/i><\/li>\n<\/ol><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

    EN PRIMER PLANO NEUROFIBROMATOSIS TIPO 1 CON NEUROFIBROMAS PLEXIFORMES (NF1-NP) Reg\u00edstrese en nuestra plataforma especializada para mantenerse al d\u00eda sobre los avances cient\u00edficos en el diagn\u00f3stico, la evaluaci\u00f3n cl\u00ednica y el tratamiento de la NF1-NP. Acerca de la NF1-NP Una afecci\u00f3n que a menudo es debilitante y, en muchos casos, cambia la vida, y que…<\/p>\n","protected":false},"author":4,"featured_media":0,"parent":0,"menu_order":1,"comment_status":"closed","ping_status":"closed","template":"elementor_header_footer","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-22028","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nNF1-NP | SpringWorks Therapeutics<\/title>\n<meta name=\"description\" content=\"Inf\u00f3rmese sobre los avances cient\u00edficos en el diagn\u00f3stico, la evaluaci\u00f3n cl\u00ednica y el tratamiento de la NF1-NP. 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